Kevin experienced lower back, but he didn't think much of it - until one morning he woke up in too much pain to walk. Testing revealed blood clots in Kevin's leg and factor V Leiden. Kevin says, "I also wish it was more widely known that a cause of lower back pain could be blood clots. Hardly any of the doctors I interacted with were aware of that, and I have had many excellent and heroic doctors who helped keep my body intact."
Tyson Goddard was healthy when she received a blood clot diagnosis that changed her life. She now lives blood clots in her brain, stomach & spleen. Tyson shares, "This experience changed my awareness about my own body. When something is wrong it is important to not be scared to tell the doctor, 'Something is wrong.' Live life to its fullest - every day, every minute, and every second counts."
Kassidy was 23 years old when she developed dozens of blood clots in both of her legs, her pelvis, and her stomach. Prior to her diagnosis, doctors thought she needed her appendix removed because she had the worst back pain she had ever experienced in her life. Kassidy is sharing her story to help educate other people about the signs and symptoms of blood clots and to encourage them to be an advocate for their health.
Katie is a 22-year-old nursing student who knew something was horribly wrong when she experienced chest pain and difficulty breathing. She was diagnosed with blood clots in her lungs, and her only known risk factor was taking estrogen-based birth control. Katie is sharing her story with the hope that other women will learn from what happened to her.
Erica Amatori is a 21-year-old athlete who just graduated from the College of William and Mary when she experienced an unexpected blood clot due to birth control and an overseas flight. Erica says, "I encourage other people not to ignore persistent or worsening pain as exercise soreness, especially for long periods of time, and to understand the side effects of birth control with estrogen."
Giovanna is from Mexico and she is sharing the story of her baby girl, Ivanna, who has a cerebral venous thrombosis or a blood clot that has formed in her brain’s venous sinuses. The blood clot has left Ivanna in a life-threatening situation due to severe neurological problems, but her family has not given up hope for Ivanna's recovery. Giovanna says, "We do not know how far she will get, but we do not lose hope. She is just a little fighter in this life."
It is our greatest hope that people who are affected by blood clots will read through the patient stories and come to realize a greater sense of community. Join the community and share your story with the National Blood Clot Alliance.
Jen had a blood clot in her brain that changed her life dramatically, but it didn't change her passion to live an adventure-filled life. She writes, "While on anticoagulants, I completed a 5K mud run, went backpacking, zip lining, to amusement parks and paddle boarding. I will not let the blood clot define me or what I’m capable of doing."