The RARE List™ is comprised of approximately 7,000 different rare diseases and disorders affecting more than 300 million people worldwide. This is a list of rare diseases defined in the United States where a prevalence of less than 200,000 cases is the primary criteria.
In honor of Rare Disease Day 2015, Siren Interactive, a Dohmen Company, has released an infographic that explains how rare disease communities are playing a leadership role in the development of precision medicine, a trend which will have a profound impact on the future of healthcare.
There are approximately 7,000 different types of rare diseases and disorders, with more being discovered each day. 30 million people in the United States are living with rare diseases. This equates to 1 in 10 Americans or 10% of the U.S. population. 80% of rare diseases are genetic in origin, and thus are present throughout a person’s life, even if symptoms do not immediately appear.
Rare Disease Day is an annual observance held on the last day of February to raise awareness for rare diseases and improve access to treatments and medical representation for individuals with rare diseases and their families.