My blog about living with Congenital Central Hypoventilation Syndrome (CCHS) (Otherwise known as Ondine's Curse)

My blog about living with Congenital Central Hypoventilation Syndrome (CCHS) (Otherwise known as Ondine's Curse)

Ondine's Curse otherwise known as the historical name for Congenital Central Hypoventilation Syndrome (CCHS), a serious form of central sleep apnea. CCHS causes patients to lose autonomic control of breathing, resulting in the need to consciously initiate every breath. If untreated, patients with CCHS will die.

Ondine's Curse otherwise known as the historical name for Congenital Central Hypoventilation Syndrome (CCHS), a serious form of central sleep apnea. CCHS causes patients to lose autonomic control of breathing, resulting in the need to consciously initiate every breath. If untreated, patients with CCHS will die.

Foto de Ondine's Curse - http://www.bodas.net/complementos-novia/ondines-curse--e46605

Foto de Ondine's Curse - http://www.bodas.net/complementos-novia/ondines-curse--e46605

Foto de Ondine's Curse - http://www.bodas.net/complementos-novia/ondines-curse--e46605

Foto de Ondine's Curse - http://www.bodas.net/complementos-novia/ondines-curse--e46605

Ondine Curse  /  オンディーヌの呪い薔薇を封入し王冠と額縁のマンテル仕様のアンティークなネックレスになります。size : necklacet...|ハンドメイド、手作り、手仕事品の通販・販売・購入ならCreema。

Ondine Curse / オンディーヌの呪い薔薇を封入し王冠と額縁のマンテル仕様のアンティークなネックレスになります。size : necklacet...|ハンドメイド、手作り、手仕事品の通販・販売・購入ならCreema。

Photography and editing: @rebecasaray Model and makeup: Estela Naiad Styling: Ondine's curse Assistant: Sergio Sleeves 💀 Welcome to #GothicandAmazing 💀

Photography and editing: @rebecasaray Model and makeup: Estela Naiad Styling: Ondine's curse Assistant: Sergio Sleeves 💀 Welcome to #GothicandAmazing 💀

#13 Sedative Ondine’s Curse  Il principio attivo di questa playlist è Mùm, gruppo islandese di musica elettronica.  La loro musica è una miscela di beat elettronici ispirati alla scuola berlinese, partiture strumentali che uniscono chitarre, basso, piano, tastiere "vintage", archi, fisarmonica e altro ancora, e melodie dolcissime e delicate come una ninnananna.  Check the tracklist at  http://www.pilltapes.com/ondines-curse

#13 Sedative Ondine’s Curse Il principio attivo di questa playlist è Mùm, gruppo islandese di musica elettronica. La loro musica è una miscela di beat elettronici ispirati alla scuola berlinese, partiture strumentali che uniscono chitarre, basso, piano, tastiere "vintage", archi, fisarmonica e altro ancora, e melodie dolcissime e delicate come una ninnananna. Check the tracklist at http://www.pilltapes.com/ondines-curse

Liam Derbyshire without the help of a life-support machine to sustain his breathing, the 14-year-old boy might really die before he wakes.  During the day, the 14-year-old can consciously inhale and exhale, but at night, when consciousness fades away, his breathing stops. Liam, who lives in Britain, has Central Hypoventilation Syndrome (CCHS) or Ondine's Curse -- a potentially fatal and incurable disorder. When Liam goes to sleep, his brain forgets to tell his lungs to breathe.

Liam Derbyshire without the help of a life-support machine to sustain his breathing, the 14-year-old boy might really die before he wakes. During the day, the 14-year-old can consciously inhale and exhale, but at night, when consciousness fades away, his breathing stops. Liam, who lives in Britain, has Central Hypoventilation Syndrome (CCHS) or Ondine's Curse -- a potentially fatal and incurable disorder. When Liam goes to sleep, his brain forgets to tell his lungs to breathe.

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