My blog about living with Congenital Central Hypoventilation Syndrome (CCHS) (Otherwise known as Ondine's Curse)

My blog about living with Congenital Central Hypoventilation Syndrome (CCHS) (Otherwise known as Ondine's Curse)

Ondine's Curse otherwise known as the historical name for Congenital Central Hypoventilation Syndrome (CCHS), a serious form of central sleep apnea. CCHS causes patients to lose autonomic control of breathing, resulting in the need to consciously initiate every breath. If untreated, patients with CCHS will die.

Ondine's Curse otherwise known as the historical name for Congenital Central Hypoventilation Syndrome (CCHS), a serious form of central sleep apnea. CCHS causes patients to lose autonomic control of breathing, resulting in the need to consciously initiate every breath. If untreated, patients with CCHS will die.

#13 Sedative Ondine’s Curse  Il principio attivo di questa playlist è Mùm, gruppo islandese di musica elettronica.  La loro musica è una miscela di beat elettronici ispirati alla scuola berlinese, partiture strumentali che uniscono chitarre, basso, piano, tastiere "vintage", archi, fisarmonica e altro ancora, e melodie dolcissime e delicate come una ninnananna.  Check the tracklist at  http://www.pilltapes.com/ondines-curse

#13 Sedative Ondine’s Curse Il principio attivo di questa playlist è Mùm, gruppo islandese di musica elettronica. La loro musica è una miscela di beat elettronici ispirati alla scuola berlinese, partiture strumentali che uniscono chitarre, basso, piano, tastiere "vintage", archi, fisarmonica e altro ancora, e melodie dolcissime e delicate come una ninnananna. Check the tracklist at http://www.pilltapes.com/ondines-curse

Photography and editing: @rebecasaray Model and makeup: Estela Naiad Styling: Ondine's curse Assistant: Sergio Sleeves 💀 Welcome to #GothicandAmazing 💀

Photography and editing: @rebecasaray Model and makeup: Estela Naiad Styling: Ondine's curse Assistant: Sergio Sleeves 💀 Welcome to #GothicandAmazing 💀

Undines (Latin: Unda — a wave), also called ondines, appear in European folklore as fairy-like creatures; the name may be used interchangeably with those of other water spirits. Undines are said to be able to gain a soul by marrying a man and bearing his child. The German folktale of Ondine, a water nymph who curses her unfaithful husband to cease breathing if he should ever fall asleep again, is the basis for "Ondine's Curse," the historical term for congenital central hypoventilation…

Undines (Latin: Unda — a wave), also called ondines, appear in European folklore as fairy-like creatures; the name may be used interchangeably with those of other water spirits. Undines are said to be able to gain a soul by marrying a man and bearing his child. The German folktale of Ondine, a water nymph who curses her unfaithful husband to cease breathing if he should ever fall asleep again, is the basis for "Ondine's Curse," the historical term for congenital central hypoventilation…

Foto de Ondine's Curse - http://www.bodas.net/complementos-novia/ondines-curse--e46605

15 coronas de flores para novias (fotos)

Foto de Ondine's Curse - http://www.bodas.net/complementos-novia/ondines-curse--e46605

Foto de Ondine's Curse - http://www.bodas.net/complementos-novia/ondines-curse--e46605

15 coronas de flores para novias (fotos)

Foto de Ondine's Curse - http://www.bodas.net/complementos-novia/ondines-curse--e46605

CCHS - my daughter has this disease - we need to raise awareness and work for more understanding and a cure

CCHS - my daughter has this disease - we need to raise awareness and work for more understanding and a cure

Liam Derbyshire without the help of a life-support machine to sustain his breathing, the 14-year-old boy might really die before he wakes.  During the day, the 14-year-old can consciously inhale and exhale, but at night, when consciousness fades away, his breathing stops. Liam, who lives in Britain, has Central Hypoventilation Syndrome (CCHS) or Ondine's Curse -- a potentially fatal and incurable disorder. When Liam goes to sleep, his brain forgets to tell his lungs to breathe.

Liam Derbyshire without the help of a life-support machine to sustain his breathing, the 14-year-old boy might really die before he wakes. During the day, the 14-year-old can consciously inhale and exhale, but at night, when consciousness fades away, his breathing stops. Liam, who lives in Britain, has Central Hypoventilation Syndrome (CCHS) or Ondine's Curse -- a potentially fatal and incurable disorder. When Liam goes to sleep, his brain forgets to tell his lungs to breathe.

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