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August 28, 2013: Hutchinson-Gilford Progeria Syndrome is an extremely rare genetic disease wherein symptoms resembling aspects of aging are manifested at a very early age. The word progeria comes from the Greek words "pro" (πρό), meaning "before" or "premature", and "gēras" (γῆρας), meaning "old age". The disorder has a very low incident rate, occurring in an estimated 1 per 8 million live births.

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Hayley Okines suffers from an extremely rare genetic condition called Hutchinson Gilford Progeria Syndrome, also known as HGPS or Progeria.

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Progeria, the "Aging Disease"

Laymen have called it the “aging disease,” but the correct medical term is Hutchinson-Gilford Progeria Syndrome. The medical community generally refers to it as progeria. The word Progeria comes from the Greek progeros, meaning 'prematurely old'. Progeria is a rare, progressive, genetic disorder causing children to age rapidly.

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Hayley Okines, who suffered from an extremely rare genetic condition called Hutchinson Gilford Progeria Syndrome, died April 3rd. She was 17 yrs old.

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FOLLOW US ON INSTAGRAM! PRF's Mission is to discover treatments & the cure for Hutchinson-Gilford Progeria Syndrome & its aging-related disorders, including heart disease.

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This is a condition known as Hutchinson-Gilford Progeria Syndrome. It is a very rare condition that accelerates the aging process in children. The average life span for children with this disorder is 13 years of age.

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Progeria (also known as “Hutchinson–Gilford progeria syndrome” and “Hutchinson–Gilford syndrome”) is an extremely rare, severe, genetic condition wherein symptoms resembling aspects of aging are manifested at an early age.

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Hutchinson-Gilford Progeria Syndrome is the most well known of the progeroid syndromes. Other include Werner Syndrome, Cockayne Syndrome, Neonatal Progeroid Syndrome and Atypical Progeria Syndrome.

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Sam Berns, a courageous young man with Hutchinson-Gilford Progeria Syndrome. Sam may have only lived 17 years, but in his short life he taught the rest of us a lot about how to live

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